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Wednesday, October 8, 2008

Spencer's Scoliosis

Spencer has scoliosis and kyphosis of the spine.
It's a fairly significant curve and we see the top
orthopedic surgeon at our local Children's hospital
annually to monitor him. Yesterday was our trip
for xrays and a checkup. Spencer enjoyed being
picked up alone from school early and riding in the
front with me! We were lucky enough to see a couple
of trains on the way. The ones on the overpass are
a favorite, especially as we drive under them!
He found Taylor's sunglasses, too,
and had to check out his looks in the visor mirror.
Wearing the goofy gown and waiting
weren't as fun as the 30 minute drive to
the hospital! The scoliosis remains unchanged,
which is a big relief! Any worsening means
we have to do back surgery. The kyphosis had
gotten a little worse but not enough to do anything
drastic at this time. We like our doctor! He has 29
years of experience and has other autistic patients.
And he has an autistic granddaughter!
A treat of chips on the way home....
thanks, Spencer, for being a delight even
though it was all a little stressful on me!
I know worry never improved a situation
but each year at our visit I anticipate the
possibility of that surgery.
We are keeping an eye on
any discomfort, pain or change in his
gait, which would determine that the
waiting would be over. So far God has seen
fit to give us another year surgery free!

42 comments:

  1. Sweet relief, isn't it?! I'm happy that you got good news. Good job, Spencer, being patient... I'm sure yesterday wasn't all that fun despite the trains and treats.

    What is kyphosis?

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  2. MG ~ kyphosis is the spine bending forward...like hunching your shoulders. In contrast, scoliosis is the s-shaped curve of the spine from side to side. Not a good combination! But Spencer was extremely good! What a change from laying on the floor in protest just a few years ago! ;)

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  3. Aww! He looks like he is enjoying the outing. Not as fun for you, though, I know. A big "YAY" for the good news! :D

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  6. That's wonderful news, that surgery is not required at this time. Hope it continues that way. Glad he enjoyed his outing.

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  7. Betsy, there is nothing like a medical concern for one's child, is there..... You have alot on your plate, and you get so much done. I'm glad that Spencer is doing okay!

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  8. Oh, I just noticed your new banner...its gorgeous!

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  9. That's great! I'm so glad it hasn't gotten worse. He looks like he had a nice time! How sweet!

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  10. Wonderful news, Betsy. I imagine, although the purpose of the outing is difficult, that he loves having some one on one time with his Mom - and I am sure you do too.

    Again, I am continually inspired by your steady love and determination. These boys, in fact all your five men, are blessed to have you.

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  11. Betsy you are an amazing lady amongst all your "men" ~ I celebrate the good news that you share!

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  12. I am delighted to hear all is okay with Spencer! Thank you for sharing his outing with us!

    Stop by when you have a minute - I have an award for you.
    Cynthia

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  13. Pass those chips Spencer! I am happy to know that his checkup went well!

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  14. Betsy, I had to look up kyphosis. I'd never heard that term before. I'm happy this will be a surgery free year for Spencer and you. I hope it won't ever come to that.

    And yea for those 2 trains. Spencer deserved the reward.

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  15. So glad for all of you that he doesn't need the surgery...Now that is certainly answered prayer..He sure did seem to like wearing those sunglasses and cruising with mom!

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  16. You are a blessed mother my friend. God is good.

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  17. elk ~ thanks very much! Yes, I am surrounded by men here! :)

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  18. Suza ~ thanks for those nice words...yes, it was actually nice to have one boy out with me. It doesn't happen very often! And it was a blessing that he was happy and cooperative the whole time!

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  19. Praise the Lord! Spencer looked like he was enjoying the trip. I'm so happy you got good news. Such a blessing!

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  20. I'm so happy for your good news.

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  21. wow...so worrying doesn't disappear as they get older?? my mom warns me it only gets worse!! LOL...God in you is remarkable as is your whole family! hooorrray for the good news!

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  22. By the way, I love your new banner - what a beautiful box.

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  23. Mother/Wives
    are the starch
    of family fabric.

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  24. Granola ~ no, it doesn't! Although I do try to remind myself that it doesn't help one bit and it just drains you of emotional energy.

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  25. jfrancis ~ what a beautiful saying....I love it...and it is soooo true! ;)

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  26. YEAH! Praise God for another year without surgery. He seemed like a very agreeable patient! I hope you rewarded yourself as well! What a great idea to take your camera. I love the new banner.

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  27. Betsy I love your new banner! What a beautiful painting of the apples in the old tin!

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  28. Save a chip for me, Spencer! It's always more stressful on the parents isn't it.

    CJ xx

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  29. Spencer looks too cool in his shades! I'm glad he doesn't have to have surgery. Except, is there an age limit above which they don't want to do it? I always thought it was a surgery for pre-adolescents. How old are your boys?

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  30. Hey Betsy. Glad the report was good. I've tagged you for a meme. Hope you haven't already gotten this one. Hop on my blog to get the rules. Have fun.

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  31. I popped in to say....you've made the perfect choice for a back to school, teacher's pet, autumn days, harvest is here banner. It speaks to me.

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  32. So happy for the good news! um... Spencer is rockin' those shades! He's a cutie! Save some of those tastey lays for me!

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  33. god is definitely at play here. he knows we all have plenty on my minds these days! glad spencer has another year free of surgery!

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  34. What a relief for all of you to hear the good news! That is a difficult operation to have to go through. Would a brace help at all? I hope the curvatures stop and he'll never need more intervention! Happy to know he saw the trains! :-)

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  35. Good on you Spencer! Please give him a hug for me. :)

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  36. Pat ~ We talked about a brace but his doctor thinks it would just be too much with his autism, being nonverbal, etc. It's a huge commitment for a 'normal' child and quite a difficult thing to do...wearing it 24/7 for a year or more. We would opt to jump directly to surgery, but that would be a hard thing, too..."putting our whole family through hell" as the doctor put it! So, we will do it if it progresses, but not until then.

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  37. Found your blog through Faces of Autism. My son Jesse who I have posted a photo of also has scoliosis and kyphosis.

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  38. Hello
    I really enjoyed reading your blog. Recently I was diagnosed with scoliosis and I have been looking on the net for all sort of information on non-surgical treatments for scoliosis. I found http://www.scoliosisspecialists.com the leading provider of the Spinecor brace. Spinecor has changed my life, it’s a soft, dynamic scoliosis brace and I recommend it to anyone with idiopathic scoliosis. Well anyways, I look forward to all the updates. Thanks again.
    Jessica

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